Can't help much with finding a decent endo, all the ones I've been sent to stare at me blankly until they realize I should be seeing a nephrologist, not an endo...

OTOH, I *can* commiserate with you on "Knowing more about your condition than the medical staff around you". BTDT all my life.
For some reason, doctors don't *like* being told "I know what's wrong with me and you don't." By a 10 year old.