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And the verdict is...
"Meh, we dunno."
Endocrinologist is 'disinclined' to think it is adrenal, but glucose instead. (His reason? I'm not hyperpigmented. I'm a *redhead* you dolt, we *don't* pigment... and besides, I *have* had a large increase in freckles in the last five months, without sun exposure.)
Despite me sitting there and telling him that every &*%$@$%# doc I've ever seen has said that at first, then come back with "Huh, I guess not. I dunno."
Despite me sitting there telling him that my BP drops below 110/70 unless I drink 1/2 gallon of salt water a day.
Despite me sitting there telling him that I *have* a glucosometer, and that it reads like clockwork, and *does not* correlate with my feeling craptacular.
I swear to god, I may as well not have been in the room. I could have saved two hours, and just had him look at my previous blood workup, since that's all he did.
I think I am 'disinclined' to want to go back to him.
I have a battery of tests on scrip, and I have a call in to find out if the ACTH test listed is an ACTH *response* test, or just yet another goddamned ACTH snapshot, like I've already had two of. If it's the latter, that's useless, and I'll argue until I get the correct one.
Oh, and the followup appt?
Six weeks. Six more weeks of this shit, until he goes "Meh, I dunno" again.
Edit: Okay, so mental fog and irrationality is something else I'm dealing with when stressed or frustrated. Thanks to![[livejournal.com profile]](https://www.dreamwidth.org/img/external/lj-userinfo.gif)
ginkgo looking up some of the tests he ordered, it's much more oriented towards adrenal than our spoken conversation indicated. In fact, it's pretty damned comprehensive. Thanks hon, that makes me feel tons better.
Endocrinologist is 'disinclined' to think it is adrenal, but glucose instead. (His reason? I'm not hyperpigmented. I'm a *redhead* you dolt, we *don't* pigment... and besides, I *have* had a large increase in freckles in the last five months, without sun exposure.)
Despite me sitting there and telling him that every &*%$@$%# doc I've ever seen has said that at first, then come back with "Huh, I guess not. I dunno."
Despite me sitting there telling him that my BP drops below 110/70 unless I drink 1/2 gallon of salt water a day.
Despite me sitting there telling him that I *have* a glucosometer, and that it reads like clockwork, and *does not* correlate with my feeling craptacular.
I swear to god, I may as well not have been in the room. I could have saved two hours, and just had him look at my previous blood workup, since that's all he did.
I think I am 'disinclined' to want to go back to him.
I have a battery of tests on scrip, and I have a call in to find out if the ACTH test listed is an ACTH *response* test, or just yet another goddamned ACTH snapshot, like I've already had two of. If it's the latter, that's useless, and I'll argue until I get the correct one.
Oh, and the followup appt?
Six weeks. Six more weeks of this shit, until he goes "Meh, I dunno" again.
Edit: Okay, so mental fog and irrationality is something else I'm dealing with when stressed or frustrated. Thanks to
ginkgo looking up some of the tests he ordered, it's much more oriented towards adrenal than our spoken conversation indicated. In fact, it's pretty damned comprehensive. Thanks hon, that makes me feel tons better.
no subject
- My appointments with the endo are usually about 6 weeks out too, so I think that's due to busyness rather than the tests. Maybe ask what the turnaround time for the tests are.
- The cancellation list is very useful. I usually get in within 2 weeks of getting on it.
- Endos are more used to dealing with infertility and diabetes. It may take him a while to move out of his comfort zone. I suspect every endo will be the same in the beginning, whether or not you're smart.
- Things that helped me were a symptoms chart and telling him what the diagnosis was, though it sounds like you have already done both of those.
- My endo barely seems to remember who I am from one visit to the next. Your situation and need are strong enough that you might try something to stand out with the doctor - maybe not cookies, given their sensitivity to diabetes. Something tangible though, rather than just your great personality.
It took over a year to get treatment for my PCOS, once I started really pursuing it with my doctors. For the most part, the hard thing was to get to the endocrinologist - my ob/gyn finally referred me for infertility, and I used the opportunity to convince him. The insulin-resistance helped a lot, though - whatever I have, that was a symptom he could treat, and the treatment (metformin) helped all the symptoms.
I still have a serious problem with the side-effects, which he blew off twice. I will have to see if the manufacturer's warning that you *can* get hypoglycemia will convince him.
Thank GOD for the internet and supportive spouses. People with uncommon diseases really have to manage their own care. Without the internet, it would be much harder to find the info, and without the spouse, the symptoms can make it really hard to interpret it.
Best of luck, sir - we're thinking of you.
no subject
For me, it took one visit to the endo to get a prescription. I had already done 9 months of asking for help, then 3 months of blood tests, so there was enough evidence to move immediately.
I didn't even get as far as the fasting glucose, though - so you've already finished what took me a year to do.