And the verdict is...

[kickaha]

"Meh, we dunno."

Endocrinologist is 'disinclined' to think it is adrenal, but glucose instead. (His reason? I'm not hyperpigmented. I'm a *redhead* you dolt, we *don't* pigment... and besides, I *have* had a large increase in freckles in the last five months, without sun exposure.)

Despite me sitting there and telling him that every &*%$@$%# doc I've ever seen has said that at first, then come back with "Huh, I guess not. I dunno."

Despite me sitting there telling him that my BP drops below 110/70 unless I drink 1/2 gallon of salt water a day.

Despite me sitting there telling him that I *have* a glucosometer, and that it reads like clockwork, and *does not* correlate with my feeling craptacular.

I swear to god, I may as well not have been in the room. I could have saved two hours, and just had him look at my previous blood workup, since that's all he did.

I think I am 'disinclined' to want to go back to him.

I have a battery of tests on scrip, and I have a call in to find out if the ACTH test listed is an ACTH *response* test, or just yet another goddamned ACTH snapshot, like I've already had two of. If it's the latter, that's useless, and I'll argue until I get the correct one.

Oh, and the followup appt?

Six weeks. Six more weeks of this shit, until he goes "Meh, I dunno" again.

Edit: Okay, so mental fog and irrationality is something else I'm dealing with when stressed or frustrated. Thanks to ginkgo looking up some of the tests he ordered, it's much more oriented towards adrenal than our spoken conversation indicated. In fact, it's pretty damned comprehensive. Thanks hon, that makes me feel tons better.

Comments

[kickaha.livejournal.com]

I know. I'm just tired of feeling like the walking dead.

I'm also upset that I didn't feel listened to. I mean jesus christ, this is just wetware debugging. Rule 1 of debugging: listen to the users, catalog the evidence, use it as your guide. Rule 2: If your hypothesis doesn't explain the evidence, it's almost certainly wrong. Instead, this was like dealing with outsourced tech support. He had a script to go through, and nothing I said was going to change that course.

I can't be on a six week turnaround treadmill like this. I'll go insane.

[ginkgo.livejournal.com]

He did open up the script to allow for the ACTH test, though.

I think the six-week turnaround is based on the tests. You could always ask to schedule the follow-up visit to that now, when you ask to be on the cancellation call list. ;)

[kickaha.livejournal.com]

Well, the ACTH test is just written as 'ACTH', not 'ACTH response', nor outlined with a time table the way the glucose response test. Nor did he go into detail about the ACTH test the way he did with the glucose response test. He made it very clear that the GRT was one I would have to sit there for, but he did not say that about the ACTH. I believe the ACTH is just a snapshot (again), but I called and left a message for a callback to confirm.

And yes, I will definitely be calling back to see if I can get on a cancel list.