I'm so sorry that you don't feel good about the appointment today.
I think that finding out abut the ACTH test is important before we move forward.
I honestly didn't expect anything else today. This was really a new patient and intake visit more than anything else. Also, Addison's manifests differently in different people, and, since it is so rare, it may take a while before a doctor develops a robust mental picture of what an Addison's patient can look like.
My suggestion for moving forward:
1) Find out about the ACTH test (if it's not the timed one, call the doc and have him order it.) 2) Schedule tests and go. 3) Ask to be put on the waiting list for a first-available appointment. 4) Go in the next time and a) remind him about your mother, and b) remind him that you have invested a large amount of time in researching this.
Smooches, hon. We'll walk, crawl, or push through this. :)
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Date: 2006-06-21 10:19 pm (UTC)I think that finding out abut the ACTH test is important before we move forward.
I honestly didn't expect anything else today. This was really a new patient and intake visit more than anything else. Also, Addison's manifests differently in different people, and, since it is so rare, it may take a while before a doctor develops a robust mental picture of what an Addison's patient can look like.
My suggestion for moving forward:
1) Find out about the ACTH test (if it's not the timed one, call the doc and have him order it.)
2) Schedule tests and go.
3) Ask to be put on the waiting list for a first-available appointment.
4) Go in the next time and a) remind him about your mother, and b) remind him that you have invested a large amount of time in researching this.
Smooches, hon. We'll walk, crawl, or push through this. :)